Comments on: Why New York? http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/ A healthblogs.org weblog Tue, 02 Dec 2008 20:06:51 +0000 http://wordpress.org/?v=2.6.5 By: emily http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-464 emily Fri, 13 Jun 2008 18:53:58 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-464 trying to find a store with the name of Cook and Baker??with whom one might be registered for wedding gifts??? trying to find a store with the name of Cook and Baker??with
whom one might be registered for wedding gifts???

]]> By: Carole http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-274 Carole Thu, 09 Aug 2007 21:13:46 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-274 Oops. The post should have listed my name. It HAS been a long time since I have posted. Sorry for the error Mary-Franklin. Carole Oops. The post should have listed my name. It HAS been a long time since I have posted. Sorry for the error Mary-Franklin.

Carole

]]> By: Mary-Franklin http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-273 Mary-Franklin Thu, 09 Aug 2007 21:12:47 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-273 Hi all, Sorry for being inattentive to this blog. My latest update is the same as Mary Franklin's regarding a winter start for the Phase II trial of PD0332991. When I read about Pfizer laying off thousands of its pharm reps, my heart skipped a beat and I immediately thought about PD. I hope all is still proceeding. Carole Hi all,
Sorry for being inattentive to this blog. My latest update is the same as Mary Franklin’s regarding a winter start for the Phase II trial of PD0332991. When I read about Pfizer laying off thousands of its pharm reps, my heart skipped a beat and I immediately thought about PD. I hope all is still proceeding. Carole

]]> By: Mary Franklin http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-116 Mary Franklin Mon, 25 Jun 2007 04:17:47 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-116 Carole--I wrote you a regular email (our occasional myeloma Listserv correspondence) about my appt. with Dr. Ruben Niesvizky at Weill-Cornell ten days ago. I asked him about PD0332991, and he said it would probably be in test "in the winter" and he would be giving it with Velcade. He said I "would be a candidate." As it turns out from all my tests there, I am stable enough to avoid chemo for a while (my regular oncologist is with Memorial-Sloan Kettring on L.I.). Hope I can last till that drug is available! Carole–I wrote you a regular email (our occasional myeloma Listserv correspondence) about my appt. with Dr. Ruben Niesvizky at Weill-Cornell ten days ago. I asked him about PD0332991, and he said it would probably be in test “in the winter” and he would be giving it with Velcade. He said I “would be a candidate.”

As it turns out from all my tests there, I am stable enough to avoid chemo for a while (my regular oncologist is with Memorial-Sloan Kettring on L.I.). Hope I can last till that drug is available!

]]> By: cookandbaker http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-16 cookandbaker Sat, 12 May 2007 16:09:44 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-16 Re: Margaret's Post According to the lead researcher there is little to no toxicity. Unlike standard chemo drugs which target fast dividing cells (which include the cells that line the GI tract, hair, etc leading to the toxic effects), this simply stops the developing plasma cell from further progression. Therefore, there is no toxicity. In the trials so far, when dex was added to the PD molecule, it was used at 1/10 the dose normally used and was effective. Imagine the "ease" of use when it is only 1/10 the normal dose. Perhaps we would not have those terrible effects to deal with. The last I heard, Phase II trials had been moved from June to September. Let's all hope this drug continues to produce the results seen so far. This drug is not a "bandaid"; this stops the myeloma engine cold. Hoorah for researchers!!!!! Carole Re: Margaret’s Post
According to the lead researcher there is little to no toxicity. Unlike standard chemo drugs which target fast dividing cells (which include the cells that line the GI tract, hair, etc leading to the toxic effects), this simply stops the developing plasma cell from further progression. Therefore, there is no toxicity. In the trials so far, when dex was added to the PD molecule, it was used at 1/10 the dose normally used and was effective. Imagine the “ease” of use when it is only 1/10 the normal dose. Perhaps we would not have those terrible effects to deal with.

The last I heard, Phase II trials had been moved from June to September.

Let’s all hope this drug continues to produce the results seen so far. This drug is not a “bandaid”; this stops the myeloma engine cold.

Hoorah for researchers!!!!!

Carole

]]> By: Jenny Desmond http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-12 Jenny Desmond Fri, 11 May 2007 00:41:28 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-12 Hi, My name is Jenny and I am part of an online community called CarePlace, for people with similar health concerns and their caregivers. I came across your blog and story and want to introduce you to our site. We have recently opened a new Multiple Myeloma community and forum and would love to hear what you think. We offer a unique online support network for those with MM. As your blog relates to what we are doing at CarePlace, I wonder if you might visit our site and let me know if you think it might be helpful to the people who communicate through and with you. At CarePlace, you can create your own webpage, join multiple communities, share an online journal with family members and friends and chat live with other members, in addition to sharing and supporting. CarePlace is a great resource for the exchange of ideas and information. It's important to us to get feedback from people like you about CarePlace as we develop our site. Site address is www.CarePlace.com. Please add me as a friend (profile name Jen D). I would very much appreciate any insight and thoughts you have about our organization and the site. Thanks in advance! Jenny (jend) Hi,

My name is Jenny and I am part of an online community called CarePlace, for people with similar health concerns and their caregivers. I came across your blog and story and want to introduce you to our site.

We have recently opened a new Multiple Myeloma community and forum and would love to hear what you think. We offer a unique online support network for those with MM. As your blog relates to what we are doing at CarePlace, I wonder if you might visit our site and let me know if you think it might be helpful to the people who communicate through and with you.

At CarePlace, you can create your own webpage, join multiple communities, share an online journal with family members and friends and chat live with other members, in addition to sharing and supporting. CarePlace is a great resource for the exchange of ideas and information.

It’s important to us to get feedback from people like you about CarePlace as we develop our site. Site address is http://www.CarePlace.com. Please add me as a friend (profile name Jen D). I would very much appreciate any insight and thoughts you have about our organization and the site.

Thanks in advance!

Jenny (jend)

]]> By: Margaret http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-7 Margaret Sun, 29 Apr 2007 18:52:31 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-7 I'd never heard of this, either. Are there any toxic side effects, as far as you know? I did a quick search and saw that it is more effective with Dex, and that it targets MM clones (?). Interesting that it is a kinase inhibitor. I have been reading a bit about those, since curcumin is one, too. Please keep us posted. Margaret I’d never heard of this, either. Are there any toxic side effects, as far as you know? I did a quick search and saw that it is more effective with Dex, and that it targets MM clones (?).
Interesting that it is a kinase inhibitor. I have been reading a bit about those, since curcumin is one, too.
Please keep us posted.
Margaret

]]> By: unco http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-6 unco Sat, 28 Apr 2007 17:38:17 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-6 I'll be seeing Dr. Hayman. I'm trying to remember. Did you have a SCT? Beth I’ll be seeing Dr. Hayman. I’m trying to remember. Did you have a SCT?

Beth

]]> By: cookandbaker http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-5 cookandbaker Sat, 28 Apr 2007 16:49:58 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-5 It was the newest addition to the associated hotels accessible on the underground walkways and I think it was a Residence Inn. It was the farthest to walk but the registration staff thought it might be the best option because of my respiratory problems. Since it was newer they were theorizing that there would be fewer "odors" accumulated. Plus, I don't think they allowed pets which some of those places do. My only problem was finding food. It is a meat eating town unless I just didn't know where to look. My food options were very limited, what I found was not great, and I ate a lot of tuna salad for a week! That was the only downside for me among mostly a super positive experience. Who are you seeing? It was the newest addition to the associated hotels accessible on the underground walkways and I think it was a Residence Inn. It was the farthest to walk but the registration staff thought it might be the best option because of my respiratory problems. Since it was newer they were theorizing that there would be fewer “odors” accumulated. Plus, I don’t think they allowed pets which some of those places do. My only problem was finding food. It is a meat eating town unless I just didn’t know where to look. My food options were very limited, what I found was not great, and I ate a lot of tuna salad for a week! That was the only downside for me among mostly a super positive experience. Who are you seeing?

]]> By: unco http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-4 unco Sat, 28 Apr 2007 16:42:58 +0000 http://cookandbaker.healthblogs.org/2007/04/28/why-new-york/#comment-4 Where did you stay when you were in Rochester? I decided to stay at the Marriott. This trip is turning out to be quite expensive, but I'm sure it will be well worth it, based on what I've heard from everyone. Where did you stay when you were in Rochester? I decided to stay at the Marriott. This trip is turning out to be quite expensive, but I’m sure it will be well worth it, based on what I’ve heard from everyone.

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